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Old 06-19-2018, 07:24 AM   #17
Cathya
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Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
Re: Treatment after Kadcyla?

Juls;

I posted about the treatment I am on now. Ibrance and Letrozole. It is used for ER/PR+ her2- but I found a woman who is on this drug and she said her oncologist told her that it targets the hormone side and there is no reason that it wouldn't work for Her2+'s. Apparently they are running trials now on Her2+'s. I am just finishing my 2nd cycle (pill form) and won't know the results (other than my TM CA125) until scans are run mid July. This is definitely a treatment option for you. Lauren who is Her2+ is on a similar cycle to me so no results yet but I will be checking with her in July and posting her results.

Cathy
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Cathy

Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18


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