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Old 06-18-2018, 03:48 AM   #13
Juls
Senior Member
 
Join Date: Mar 2014
Location: UK
Posts: 563
Re: Treatment after Kadcyla?

Hi Flori,

I asked for an AI a few times over the last year while on Kadcyla but always told not given together!

Oncologist was "willing to be persuaded" to keep me on Kadcyla for a few more cycles, only because I had missed so many & the hope was that bilirubin had settled enough to allow treatment 3 weekly. Scans would change to 13/14 weeks from 6 weekly as no longer on drug trial. Risk being that treatment still inconsistent & I could get a lot worse! They were using 6 weekly CT as guide.


That's interesting that you stayed on a previous treatment with progression and regression. Here they seem to take you off treatments immediately.

I think I might be waiting on similar report to you - foundation/genetic test - part of trial I've just failed. Wonder if it will show up something relevant!

Meanwhile I have started Aromasin (3rd day) but this is all I'm getting at the moment.

Waiting to hear from Liver Specialist/ Integrative Radiologist this week.
Hope he can explain this shadow better than Onc & Radiologist. If its a tumour why don't they say that!


As you say Flori - Good luck to us both!
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