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Old 06-14-2018, 04:15 AM   #5
Juls
Senior Member
 
Join Date: Mar 2014
Location: UK
Posts: 563
Re: Treatment after Kadcyla?

Hi Paul,Tricia & Pam,

Thank you for your replies!
I'm meeting my Doctor this afternoon so hopefully will get some info from her. I have also noted your suggestions for discussion with her.
I think part of problem with my Kadcyla treatment was that it was a trial and therefore bound by trial rules. A few months ago I came off trial because time barred( bilirubin too high & over by 1 day) but was still bound by rules as I was getting 6 weekly CT's. Doctors thought this was way to go. I now think I should have gone back to NHS rules & would not have missed so many treatments. Less Ct's but more treatments!

Will update later.


Juls
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