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Old 11-02-2009, 09:10 AM   #2
Ellie F
Senior Member
 
Join Date: Feb 2009
Posts: 1,526
Re: Waiting on Trail, got Brain Mets...

Hi
I just don't have the words to express how sorry I am that you are facing this difficulty after such a long struggle to get on a trial. I have read a lot about p53 but didn't know they could actually test to see if it was knocked out. I am aware that some people believe vaccines given to children in the late 50's and 60's has been linked to this problem.
Please try not to despair. From your post it sounds like the door to the trial will still be open when you have had the WBR so it is by no means the end of the road.
I have lost my hair twice in 12 months and fully understand your feelings about it. Some morning's I look in the mirror and don't recognise the person I used to think I was!
You will be in my thoughts
Love Ellie
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