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Jackie07 · 01-21-2010, 09:21 PM

Barbara,

Self-esteem? Mine had been trampled long ago after my first brain surgery in 1990. Thanks to my very injured brain, I wasn't aware of it until I was fired from my job - again and again.

There was one time at church when I was at the piano . I played the wrong number because my brain was not functioning... Our small Chinese congregation went on and sang the correct hymn. I had to stop and sat through the song because I wasn't a good enough pianist to change keys 'by ear' on the spot. Turned out that everyone knows about my problem except myself. (One of my early Texas Rehab counselors had enlightened my husband about that - "the head-injured person thinks he/she is moving in normal speed while others see him/her functioning in slow motion.")

I got my confidence back whenever I was evaluated by a psychologist - I would be told that I still had a very high IQ. I was finally redeemed (from all the job losses) when the neuropsychologist (yip, there's a big difference between an experienced psychologist and a well-trained neuropsychologist) tested me (17 different batteries) and located all the 'short-circuits' in my brain.

We did not realize that chemo had add so much 'insult' to my brain 'injury'.

The only reward of this 'game' is that I 'might' qualify for disability. So we'll see.

Oh, 'forgot' to answer your question. I've done both - honest/pretend. Neither approach worked - I got 'fired' all the same.

01-21-2010, 09:21 PM	#37
Jackie07 Senior Member Join Date: Jan 2008 Location: "Love never fails." Posts: 5,808	Re: My Idea for a Game Show Barbara, Self-esteem? Mine had been trampled long ago after my first brain surgery in 1990. Thanks to my very injured brain, I wasn't aware of it until I was fired from my job - again and again. There was one time at church when I was at the piano . I played the wrong number because my brain was not functioning... Our small Chinese congregation went on and sang the correct hymn. I had to stop and sat through the song because I wasn't a good enough pianist to change keys 'by ear' on the spot. Turned out that everyone knows about my problem except myself. (One of my early Texas Rehab counselors had enlightened my husband about that - "the head-injured person thinks he/she is moving in normal speed while others see him/her functioning in slow motion.") I got my confidence back whenever I was evaluated by a psychologist - I would be told that I still had a very high IQ. I was finally redeemed (from all the job losses) when the neuropsychologist (yip, there's a big difference between an experienced psychologist and a well-trained neuropsychologist) tested me (17 different batteries) and located all the 'short-circuits' in my brain. We did not realize that chemo had add so much 'insult' to my brain 'injury'. The only reward of this 'game' is that I 'might' qualify for disability. So we'll see. Oh, 'forgot' to answer your question. I've done both - honest/pretend. Neither approach worked - I got 'fired' all the same. __________________ Jackie07 http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2 NICU 4.4 LB Erythema Nodosum 85 Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d 3 Infertility tmts 99 > 3 u. fibroids > Pills CN 3 GKRS 52301 IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET 6 TCH Cellulitis - Lymphedema - compression sleeve & glove H w x 4 MUGA 51 D, J 49 M Diastasis recti Tamoxifen B. scan Irrtbl bowel 1'09 Colonoscopy 313 BRCA1 V1247I hptc hemangioma Vertigo GI - > yogurt hysterectomy/oophorectomy 011410 Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk DEXA 1/13 1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer. 3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer. Start Vitamin D3 and Calcium supplement （600mg x2) 10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016 7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence. 7-10-2019 CT to check lung nodule. 1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule. "I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa Advocacy is a passion .. not a pastime - Joe Last edited by Jackie07; 01-21-2010 at 09:32 PM..