Thread: Hi, I am new
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Old 06-12-2009, 06:32 AM   #5
jml
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Join Date: Dec 2006
Posts: 415
Welcome, but sorry we all had to meet this way.
Prior to starting treatment, did you have a baseline Echo or MUGA performed?
If not, your Onc can write the order for those tests even before you go and see the cardiologist - and you'll have the results to share with the cardiologist when you do get to see him/her.

I'd been on Herceptin for 7 years & never experienced chest pain or decrease in cardiac function/output - Thank God!

Wishing you all the best. Know that you can come here for comfort, advice, guidance or even a swift kick in the pants if that's what you need! We're all in this together & the friends I've met here have been my lifeline.

Keep the Faith~

Jessica

Dx - 5/17/2002 @33yo;
Stage IV-IDC+liver met;Lumpectomy,12/12+ nodes; er/pr-, Her2+++
Tx1 -Navelbine+Herceptin x8 wks;No response, progression - single liver met to "innumerable/immeasureable"
Tx2 -ISIS 2504 clinical trial x 6mos;Taxol+ISIS (continuous IV);partial response.
Tx3 - Taxol+Herceptin x 13 weeks;NED
NED 9/11/03-9/17/04,
9/04-Recurrence 1-single liver met-
Taxol+Herceptin x 4 weeks prior to RFA, but NED again, cxl RFA.
12/04 -Recurrence 2 - single liver met
1/05 - RFA - partial response
2/05 - Abraxane+Herceptin x 9 weeks;No response due to improper dosing(?)
3/05 - Taxol/Carbo/Herceptin to NED again.
11/05 - Recurrence 3 - same single liver met
12/05 - Right hepatectomy-55% liver removed. Success. NED in liver ever since.
2/06 - Recurrence 4-single lesion in L breast again
3/06 -excisional biopsy. 1cm IDC, extensive high grade DCIS.
No tx due to liver still healing post hepatectomy, follow with Herceptin & scans to keep an eye on DCIS
12/06- L mastectomy w/ reconstruction 3/07 & 8/07
10/07 - Recurrence 5 - Supraclav nodes
Tx4 -Gemzar+Herceptin, til NED 3/08.
9/08 -Recurrence 6 -Supraclav nodes again.Rads1 - x 7wks
10/08 - Acute Renal Failure - ICU x4 days, hospital 1 week,
stents in ureters/kidneys x 4mos.still no known cause???
10/08 - Recurrence 7 -Sternal nodes; supraclav -NED
Tx5 - repeat Gemzar+Herceptin; NED in 1/09; finish GH cycle to 3/09.
4/09 - Recurrence 8-Sternal nodes...progression while on GH cycle.
6/09 - Tykerb/Xeloda - Yowze! very expensive out of pocket costs!!!
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