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Joanne S · 01-10-2013, 11:05 PM

I guess it's my turn to whine---I've been patting myself on the back for doing pretty good at keeping positive and hopeful, but tonight I'm not doing quite so well. I'm feeling apprehensive and anxious about what the news will be tomorrow. What am I going to hear? I hate this feeling. I'm scared. I'm feeling alone because my mets dx is somewhat rare and different from yours...

My baseline MRI was in September and have been on Aromasin (Exemestane) and Affinitor (Everolomis) for 4 months. I'm very grateful that I've been able to tolerate these meds as they have so many terrible side-effects that many can't take them. I've had my share of side-effects, wah, but if they're doing their job, I promise I won't complain about them. I had my pelvic MRI 3 days ago - tomorrow I find out if this hormonal therapy is having any beneficial effect???

I could use some positive vibes. I'm not a very good writer - can't find the words to express how much I appreciate all of you sharing your experiences, your wit, knowledge, spirit, kindness, support and prayers. Sisters, you mean the world to me. THANK YOU! Love ya, Joanne

01-10-2013, 11:05 PM	#1
Joanne S Senior Member Join Date: Aug 2007 Location: Detroit Metropolitan Area, Michigan Posts: 592	What will the results be? I guess it's my turn to whine---I've been patting myself on the back for doing pretty good at keeping positive and hopeful, but tonight I'm not doing quite so well. I'm feeling apprehensive and anxious about what the news will be tomorrow. What am I going to hear? I hate this feeling. I'm scared. I'm feeling alone because my mets dx is somewhat rare and different from yours... My baseline MRI was in September and have been on Aromasin (Exemestane) and Affinitor (Everolomis) for 4 months. I'm very grateful that I've been able to tolerate these meds as they have so many terrible side-effects that many can't take them. I've had my share of side-effects, wah, but if they're doing their job, I promise I won't complain about them. I had my pelvic MRI 3 days ago - tomorrow I find out if this hormonal therapy is having any beneficial effect??? I could use some positive vibes. I'm not a very good writer - can't find the words to express how much I appreciate all of you sharing your experiences, your wit, knowledge, spirit, kindness, support and prayers. Sisters, you mean the world to me. THANK YOU! Love ya, Joanne __________________ Aug06...Dx Age 50, IDC Left Breast, 6+/16 lymph nodes, Stg 3, ER+/PR+/HER2+ Sep06-Jan07...Mediport. Chemo: AC x 4, T x 4 Dec06-Nov07...Herceptin Feb12,2007...Surg MRM Left & SM Right, reconstruct w/expanders Mar07-Jun07...Saline Exp Jun07...Start Tamoxifen Jun07-Aug07...Rad x 25 Jun07-Oct07...Persistent fevers-unknown origin Jun07-Nov07...PT for Severe PMPS & Capsular Contracture Nov07...Surg Capsulectomy, Gel Implants, PMPS pain gone instantly. Feb08...NED 1st CANCERVERSARY!!!!! Feb08...2 months post surgery Caps Cont again :( Mar08...Stop Tamoxifen. Start Arimidex. Apr08...Sudden high fever, Hosp ICU 10 days, staph infect, emerg surg, implants removed. Outpt IVantibiotics Daily x 6 weeks Feb11...NED 5th CANCERVERSARY!!!!! Feb12...NED 6th CANCERVERSARY!!!!! Aug12...Spotting. Surg=D&C Sep12...STAGE IV = RARE BC METS TO UTERUS ILC ER+/PR+/HER2-Negative) (Different BC than originally diagnosed = IDC ER+/PR+/HER2+). Sep12...Stop Arimidex. Start Afinitor & Aromasin. Jan13...MRI = no progression no reduction Apr13...Progression. Stop Afinitor & Aromasin. Apr13...Start Chemo: Taxol & Carboplatin. Nov13...Scans & Pelvic 95+% Reduction. Nueropathy>Stop chemo start Fareston. Jan14...PET scan = no progression stable. May14...Pelvic > Bleeding & cramps. TMs up. May14...PET scan = uterine progression :( May14...Stop Fareston. Start Chemo: Xeloda.