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Old 07-03-2008, 05:32 PM   #8
Janelle
Senior Member
 
Join Date: Nov 2007
Location: Brentwood, CA
Posts: 76
I consulted with Slamon and he told me the same thing....no time specific time frame for giving herceptin has been established by studies yet. So the one year time frame is completely arbitrary in his opinion. I think his point was that if I had to stop herceptin early due to cardiac issues that I shouldn't be worried as probably taking it for some time frame less than a year may work just as well. He even mentioned the FinHer study to me.
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Janelle
Diagnosed October 2006 at age 37 wtih grade 3 IDC and high grade DCIS
Stage 1c triple positive, no node involvement but
vascular invasion
multifocal disease
Lumpectomy November, 2006
A/C every 3 weeks (started Jan., 2007 and finished March 2007); followed weekly Taxol (finished June 2007) concurrent with Herceptin (finished March 2008);
Bilateral Mast with immediate recon in Sept 2007; finished recon Dec. 2007
Started 5 years of tamoxifen Nov. 2007; started peptide vaccine clinical trial at MD Anderson October 2008 and finished active part of trial in April 2009 (monthly injections of AE37 peptitde (HLA type specific) with GM-CSF or GM-CSF alone depending on if I was in experimental or control group); started Zometa infusions June 25, 2009- 4mg every 6 months for 3 years (taking it "off-label" to try to prevent mets)
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