My News
Hi troups,
firstly thank you all for sharing and for your courage a good example for me and inspiring when things are not going well. Updating you:
The good news:
My lungs mets are stable and slightly reduced and no news mets. I have 9 under 1.2mm now but quite a few around the 1cm mark.
my original lymph node is still 1 cm now and has been basically the same size over the past 6 months which is good (I had cryo on it last july 2010)
I am still on tyk/ herc and now low dose capci (too much diarreah otherwise)
I had 2 chemoembolisation (Frankfurt) in the lungs in the last two months which has stabilised or slightly reduced the tumours. I may do laser treatments like I did for my liver ect.. and will keep you posted.
I am soooo releived to finally have had a good scan and hopefully it is a turning point in what seemed to have been a relentless progression..despite doing everything I could, hopefully more good news will follow.
Bad news the diarreah has led to an extremely painful and debilitating anal fissure, I am writing this from the bath (warm water relax the muscle that goes into spasm ) I have sometimes in great pain for hours after defecation. This pain (added to bad scans for a year) has been very very hard to cope with and wiltered my will but I am grateful for the friends that came around and have supported me I do not know what I would have done without them sometimes joining me in the bathroom (so I could stay in warm water) for a chat!
Also this board and stories help, so I hope this one help too
__________________
35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies
Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..
superior vena cava blocked: stent but face remains puffy
April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.
Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.
'Under no circumstances should you lose hope..' Dalai Lama
Last edited by fullofbeans; 08-18-2011 at 10:35 AM..
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