Hi Michelle;
Yikes - what a huge burden - for you, your family and this dear young child who must feel like she has the weight of the world on her shoulders.
I would either fly to MD Anderson or Dana Farber. I attended the Metastatic Breast Cancer Network annual conference there in May (
www.mbcnetwork.org); and this speaker is an oncologist who ONLY treats young woman with cancer - she was incredible and insightful - I would fly halfway around the world to see her and when it comes to your life; how big a hit is a flight to Boston for a good solid second opinion? Her name is:
Ann H. Partridge, M.D., M.P.H.
Director, Program for Young Women with Breast Cancer
Dana-Farber/Brigham and Women’s Cancer Center
Assistant Professor of Medicine, Harvard Medical School
Also, I would run to check out the Tumor Vaccine Group clinical trials in Seattle - I flew there from Connecticut - 8 times (check out angel flights; noted in above post); if she is not eligible for their clinical trials (which for me any way had virtually NO side effects), Dr. Disis can recommend a clinical trial in Baltimore.
Don't take the tiger by the tail; RIDE IT...God speed to you all - stay in touch please.
Love Kim from CT