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Old 10-12-2011, 03:26 PM   #17
candlegranny
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Join Date: Feb 2010
Posts: 151
Re: A HER2 CURE in the next decade?!!!

Estelle. I just talked an hour today to Maureen. I am seriously thinking about getting in this trial NEDenise... you should go with me! my husband and i will go 1st of Novemeber and see if we want to persue it. She said i was an excellent candidate...i copied my signature from here so she knows everything but my blood type! lol I am really excited about this. I have to do some planning since my 79 yr old mother with alzheimers lives with me and we have custody of 2 granddaughters 12 yrs and 8 yrs old. I would be gone for 2 weeks about every other month but the whole thing is only 3 1/2 months. what a wonderful trial. Hope it works... sure cant hurt oh and did I mention I have AFLAC... got my cancer policy just 6 months before my diagnosis of BC. They have paid me well fro all my treatments, mileage and wigs, boobs etc.... so I called my agent. they will pay my transportation to and from the hospital and $80 a night ofr my hotel bill and will pay me weekly too while i am receiving treatment in the trial.. I am so blessed that I had AFLAC it was a blessing during ny time off work and no pay check. And now to learn it will help cutail expenses for the clinicial trial is another blessing. I am really excited about the vaccine... just worried about all the needles.. i hate shots but i still have my port so it is a good thing I kept it a little longer!
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Mammogram Sep 21, 2009 everything good and clear
DX jan 19,2010 Invasive Ductal Carcinoma, Grade 2 Age 56
modified radical masectomy on LEFT side 29 Jan 2010
2.7 cm 18/31 nodes
mets to just above collar bone ( 2 nodes showed in PET)
ER- PR - / Her2 +++ (IHC) Stage 111 C
ki-67 60% nottingham score 7
A/C chemo mar 22,2010 DD
herceptin & taxotere DD june 1,2010
finished taxotere july 12, 2010
finished herceptin 16 May 2011
PET Scan 9 Aug 10, cancer in neck is gone! NED
33 Rads completed 1 Oct 2010
PET/CT Scan 6 Jan 2011 NED
PET/CT Scan 3 Aug 2011
MUGA 59% 3/22/10 -63% 9/23/10 - 51% 1/4/11 - 55% 2/17/11 - 50% 8/3/11
26 Aug 2011 NED
20 Feb 2012 NED
5 Mar 2012 PORT OUT
12 July 2012 DIEP breast reconstruction
23 Aug 2012 NED
15 Nov 2012 new breast tweeked and natural breast uplifted and implant added
17 Feb 2013 NED
27 mar 2013 lipo suction to add fat cells to new breast in hopes for needed adjustment.


"Don't spend your time worrying about when or how you are going to die, spend your time figuring out how you are going to live today". ~Elizabeth Edwards.
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