View Single Post
Old 11-20-2011, 03:16 PM   #11
CoolBreeze
Senior Member
 
CoolBreeze's Avatar
 
Join Date: Dec 2009
Posts: 562
Re: crazy request for my oncologist?

I can understand your worry and your feeling that herceptin is your safety net.

A year is the recommended therapy and I don't think any oncologist is going to be able to give you more. So far, studies show a year is the appropriate treatment and that is what an insurance company will pay for - if you talk to your onc, he might put you on an anti-anxiety but not more herceptin. But, you never know, it will be interesting to see if he does.

I think it's time to think of this in a new way. Rather than feeling like your safety net has been pulled away from you, try to do some positive thinking about all the things you have done to protect yourself. Herceptin wasn't a safety net, it was a high wire that led you to the safe ground where you can be stable and secure.

Add an exercise program, or meditation, or walk outside daily, or eat a little healthier. Try to find the places in your thought process that are negative and learn to turn them into positive thoughts that include a long and healthy life.

Medicine doesn't work the way we laypeople think. A little of this is good so we need a little more...that only works for shoes. Just know you did every single thing you were supposed to do to regain your health.

Now your challenge is the hardest of all: to begin to think of yourself as a healthy person again, and not as a cancer victim, and to not let each ache and pain turn you to thoughts of recurrence and death.

It's hard to do, I know, but it is a challenge you can master!

As a woman with Stage IV, I wish I could take back every worry I had in the time between treatment and recurrence. It was wasted energy, completely wasted, time I could have spent enjoying my life.

Please try to do the same. If cancer comes back into your life, it will make itself known. But, the odds are great that it will not and in the meantime, you have a wonderful, meaningful life to lead. Please enjoy it!

Big hugs to you!
__________________
http://butdoctorihatepink.com

08/17/09 Dx'd.
Multifocal/multicentric IDC, largest 3.4 cm, associated ADH, LCIS, DCIS
HER2+ ER+/PR- Grade 3, Node Negative

10/20/2009: Right mastectomy, reconstruction with TE
12/02/2009: Six rounds TCH, switched to Taxol halfway through due to neuropathy
03/31/2010: Finished chemo
05/01/2010: Began tamoxifen, the worst drug ever
11/18/2010: Reconstruction completed
12/02/2010: Finished herceptin
05/21/2011: Liver Mets. Quit Tamoxifen
06/22/2011: Navelbine/Zometa/Herceptin
10/03/2011: Liver Resection, left lobe. Microwave ablation, right lobe - going for cure!
11/26/2011: C-Diff Superbug Infection, "worst case doctor had seen in 20 years"
03/28/2012: Progression in ablated section of the liver - no more cure. Started Abraxane, continue herceptin/zometa
10/10/2012: Progression continues, started Halaven, along with herceptin and zometa.
01/15/2013: Progression continues, started Gemzar and Perjeta, an unusual combo, continuing with herceptin and zometa
03/13/2013: Quit Gemzar, body just won't handle it. Staying on herceptin, zometa and perjeta.
04/03/2013: CT shows 50% regression in tumor, so am starting back on Gemzar with dose reduction, staying with perjeta/herceptin/zometa. Can't argue with success!
05/09/2013: Discussing SBRT with Radiology due to inability of bone marrow to recover from chemo.
06/07/2013: Fiducial placement for SBRT
07/03/2013: Chemo discontinued, on Perjeta, Herceptin and Zometa alone
07/25/2013: SBRT (gamma knife) begins
08/01/2013: SBRT completed
08/15/2013: STABLE! continuing with Perjeta, Herceptin, Zometa
06/18/2014: ***** NED!!!!***** continuing with Perjeta, Herceptin, Zometa
01/29/2014: Still NED. continuing with Perjeta, Herceptin. Zometa lowered to every 3 months instead of monthly.
11/08/2015: Progression throughout abdomen and lungs. Started TDM-1, aka Kadcyla. Other meds discontinued. Remission was nice while it lasted.

5/27/18: Stable. Kadcyla put me right back in the barn. I have two teeny spots on my lungs that are metabolically inactive, and liver is clean.

I’m beating this MFer. I was 51 when this started and had two kids, 22 and 12. Now I’m 60. My oldest got married and trying to start s family. My youngesg graduates from Caltech this June. My stepdaughter gave me grandkids. Life is fantastic.
CoolBreeze is offline   Reply With Quote