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Re: I heard from Vicki h & have an update.
I am so incredibly sad to hear about Vickie's struggle. When I was first diagnosed less than a year ago and scanning these boards I was drawn to a post of Vickie's. She was an inspiration to me and helped me through some difficult days and I was so grateful to have her to talk to. Ever since then I have been corresponding with her and she has been a source of ongoing courage and support for me. I hadn't heard from her lately and was fearing for her and praying for her daily. She stopped emailing because she didn't want to worry me!!! (but I wanted so much to be able to comfort her) I hope now, in her time of need, that she can sense all of our prayers and they can reach across the miles and support her as she has supported so many of us. I hate cancer!! I'm sending love and courage and the strength to fight to all my sisters in this battle! Most of all, I pray for a cure!
Leslie
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2009
3-15 Age 48 -found lump
Dx 4/15/09: IBC Stage III w/extensive lymph node involvement HER2+++
5/1/09: Adria/Cytoxan for x 3-no response
6/12/09: Taxol/Herceptin for 1 tx -no response
6/24/09: added Carboplatin to T/H x 3 - no response
7/09 -added F5U -no response
7/29/09: Herceptin/Xeloda/Tykerb no response
8-18-09: 2nd opinion at MDA - IDC not IBC! First Onc disagrees,
BRCA 1/2 Neg
8-19-09: continue on Herceptin/Xeloda/Tykerb-slight response
9-24-09 MRM right breast 10x10 cm tumor! (Huge!) no necrosis - Got clear margins! A miracle!
13 of 18 nodes positive
11-2-09 -12/10 started radiation
12-10-2009 - Finished with radiation!!
2010
1/13/2010-Back on Xeloda x six cycles (have been on Tykerb/Herceptin all along)
4/4/14 - stopped Xeloda/Tykerb one cycle early. Liver enzymes high!
4/20/2010 Clear PET Scan!! NED
6/10/2010 - Finished Herceptin11/8 - Brain METS! CRAP! WBRT only option given. Four mets, separate locations in brain, no SRS
12/10 - Herceptin/Tykerb/Xeloda
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