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Old 10-01-2011, 06:25 AM   #28
fauxgypsy
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Join Date: Apr 2007
Location: Mississippi
Posts: 600
Re: I Need a Pep Talk...Very Discouraged Today

I am about 4 1/2 years out from a possible stage IV diagnosis (long story) and NED. It has gotten better and I rarely worry about it. Because of the screw up with the diagnosis I have no idea of my chance of recurrence, anywhere from 20% to 80%, no one knows. I am my old self, can pretty much do anything that I could do before considering the age difference, real close to the old normal! I am planning on reconstructive surgery very soon, an option that I wasn't given at the time of my mastectomy. I found a quote that I love about statistics. I have it at the bottom of my posts. What I do know is that if it comes back I will do my best to get over it. I have always felt that we don't know what tomorrow will bring, cancer just makes it a little more clear. It will get easier to deal with the uncertainty. It just takes time and everyone comes to terms with it differently.
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In the world of destiny, there are no statistics.
Jan. 26- mammogram and ultrasound- suspicious lump
Mid-February- lumpectomy, infiltrating ductal carcinoma ~4.5 cm and a 1 cm DCIS, did not get clear margins, did not check lymph nodes
ER+/PR+, her2 +++, nuclear grade 3 of 3
February 20-PET scan showed something on liver. No biopsy.
March- Started carboplatin, herceptin, taxol on a four week cycle
May 3- Pet scan, with intent to do a biopsy, found nothing, liver or breast- no biopsy because there is nothing to biopsy
June 21- new onc, very concerned that there had been no biopsy,
June 18th-CAT scan, bone scan-negative
August 7th - Brain MRI-negative
August 9th- mastectomy, all pathology negative
January 2008 still NED! New oncologist -herceptin for full year after chemo- until July, and tamoxifen---negative scans since May '07
July 2008-Finished Herceptin!
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