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Re: From Leslie: Hi Everyone, I have brain mets and need your support
An update from Leslie,
Hi Alice, You are the best! Thanks so much for your help with thread and encouragement. I am hanging on to the fact that you are doing so well. I am still processing this news and don't have definitive answers from onc until next week about what to expect going forward. I have had 7 WBRT so far and need three more, then chemo will start again and probably Herceptin. I'm trying not to second guess myself but I wonder if I should have never stopped the Herceptin. It was visibly effective on the primary tumor and perhaps that's why onc didn't think it was warranted but maybe I should never have been drug free!! It sure was nice to feel well fro a while though. No fatigue and no foggy thought processes. Hopefull after Wedesday I will have some answers and a treatment plan and an idea what my future holds. Meanwhile I am so grateful to know I have my friends on this forum chiming in with any advice or suggestions that might help guide my future decisions. I am all ears ladies and gents! Thanks, Leslie
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Alice
04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53
06/08, 4 A/C, Neulasta
08/08, Herceptin/tax 12 every week
10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks
11/08 33Rads; 12/08 MUGA 48
2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove
4/09 Brain MRI - CLEAR; MUGA 54
7/09 chest ultrasound,
10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!!
1/11 Hip replacement 7/11 Hip 2 replacement
4/12 4 years!! Herceptin
6/12 start reconstruction finish in 12/12
2/14 Herception - 6 years!!!
1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you
can stand up under it."
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