|
Re: From Leslie: Hi Everyone, I have brain mets and need your support
You can and will beat this Leslie - keep the faith girl. I've now had a total of 18 brain mets and I'm alive and kickin - and plan on staying that way for a long LONG time. To answer your question, I am currently on Herceptin, Tykerb, Zometa and the vaccine trial at the U of Washington. We decided not to add a chemo at this time because this combo of treatments was shrinking the brain mets by itself before I had my most recent round of Gamma Knife. We will revisit this decision in January after I finish the trial to see if chemo is warranted. I'm hoping I won't need it but we've talked about Temodar.
Did you already start WBR? Any chance you could do SRS instead?
__________________
4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.
Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial
Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED
Send me a PM if you'd like to follow my journey on Caringbridge.
|