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Old 01-24-2008, 08:20 PM   #1
fauxgypsy
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Join Date: Apr 2007
Location: Mississippi
Posts: 600
Question Great News and lymphedema question

My pet scan last week came back clear again. And an MRI I had because of pain in my hip showed nothing. Which is good even though I continue to hurt.

About six weeks ago I was getting out of the back seat of a pickup and felt like I pulled a muscle or something in my right arm. I didn't think anything about it but later that afternoon my index finger and my middle finger were swollen as was the area around those knuckles. The swelling gets worse occasionally but it has not gone away nor has it spread. At first my oncologist and my family doctor both said that it was not lymphedema and now they say it is. I didn't think that sudden swelling was a chracteristic of lymphedema but I am afraid that it will develop into it if I don't discover what is causing it. Any suggestions?

Leslie
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Jan. 26- mammogram and ultrasound- suspicious lump
Mid-February- lumpectomy, infiltrating ductal carcinoma ~4.5 cm and a 1 cm DCIS, did not get clear margins, did not check lymph nodes
ER+/PR+, her2 +++, nuclear grade 3 of 3
February 20-PET scan showed something on liver. No biopsy.
March- Started carboplatin, herceptin, taxol on a four week cycle
May 3- Pet scan, with intent to do a biopsy, found nothing, liver or breast- no biopsy because there is nothing to biopsy
June 21- new onc, very concerned that there had been no biopsy,
June 18th-CAT scan, bone scan-negative
August 7th - Brain MRI-negative
August 9th- mastectomy, all pathology negative
January 2008 still NED! New oncologist -herceptin for full year after chemo- until July, and tamoxifen---negative scans since May '07
July 2008-Finished Herceptin!
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