HER2 Support Group Forums - View Single Post - Scared of prognosis-stage IV liver mets

NanaJoni · 12-28-2011, 08:44 AM

Dear KS - so sorry you are joining us but glad you found this site and it's wonderful members. You are truly in the scariest and toughest part of the journey - making lots of decisions in a short time and not sure of which way to go. I had a similar initial diagnosis but haven't had to deal with mets. I also did the bi-lateral mx and same chemo as you are doing. It will be a tough few months and I sometimes felt like I was on a rollercoaster but now am almost a year from finishing treatment and would never have believed that things would be this good again. Lean on the folks who love you and take advantage of all the support you are offered. Educate yourself as much as possible and don't be afraid to ask any questions to get the best answers for you. Some of my friends and family think I'm a little nuts but I often tell them that the last two years has been filled with many blessings I never expected - I hope that is true for you, too. Come here often and keep us posted on your progress toward NED ("no evidence of disease").

12-28-2011, 08:44 AM	#4
NanaJoni Senior Member Join Date: May 2010 Location: Elizabethton, TN Posts: 418	Re: Scared of prognosis-stage IV liver mets Dear KS - so sorry you are joining us but glad you found this site and it's wonderful members. You are truly in the scariest and toughest part of the journey - making lots of decisions in a short time and not sure of which way to go. I had a similar initial diagnosis but haven't had to deal with mets. I also did the bi-lateral mx and same chemo as you are doing. It will be a tough few months and I sometimes felt like I was on a rollercoaster but now am almost a year from finishing treatment and would never have believed that things would be this good again. Lean on the folks who love you and take advantage of all the support you are offered. Educate yourself as much as possible and don't be afraid to ask any questions to get the best answers for you. Some of my friends and family think I'm a little nuts but I often tell them that the last two years has been filled with many blessings I never expected - I hope that is true for you, too. Come here often and keep us posted on your progress toward NED ("no evidence of disease"). __________________ Joni -64 yrs old - 3/01/10: found lump in rt.breast 3/12/10: mammogram/ultrasnd/biopsy-invasive bc & DCIS; 2 tumors (2cm er-/pr-/HER2-& 1.8 cm er-/pr-/HER2+); grade 3;poorly differentiated 3/24/10:sent.node biopsy clear 3/31/10:bi-lateral mx.;atypical ductal hyperplasia-lft side 4/21/10:wound revision-infection/scarring 4/28/10:seromas both sides 5/21/10:port installed,TCH chemo (6 x 3 wks); Herc,-1yr; 33 rad tx after chemo 07/2010: port not working-2nd port didnt'work;3rd port opposite side. 07/2010: 2 weeks after 3rd port surgery, threw 3 pulm. emboli-IVC filter installed; warfarin 08/2010: hospitalizations w/3 of chemos; decision to stop after 4th-on to radiation in Oct 2010;Herc cont. 12/03/2010 - finished 33 rads Hooray!! cont. Herc. every 3 wks 4/2011 - pneumonia ??? Nope-radiation pneumonitis. No more Herc. 5/2011 - NED!!! port out. 8/2011 - clean PET & CT scans.Still NED 7/2012 - Still NED/very blessed. 2/2013 - 6 mos checkup-all clear. CA2729 down frm 13 to 11.