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dchips1 · 12-02-2009, 07:32 PM

Hi, I have been on steroids again since September, they can cause all sorts of issues. I know right now my face is so puffy that it was pushing on my sinus area and wound up feeling so congested. I have had WBR as well and 2 gamma knifes. I am not sure why your throat feels the way it does, try garling with warm salt water, eleveate head of bed and humidy the room your are in. I know for me the "panicky" lost feeling just add to the fatique, stress and world spinning around. Keep on the herceptin, supposably when you do WBR you fracture the Blood brain Barrier and it gets in there? Hang in there, most important of all is take some time for yourself, rest, eat and give yourself a few days to catch up, then look at making changes to your treatment team if needed. I am sorry that I can't offer any better advice. Steroids can make you deppressed, or agitated, fatiqued, short tempered and rapid non rational thinking.... forgetful and other health issues. Take something to relax if you need too. I got to the point I felt crazy because I was not sleeping at night.

Good Luck
Thoughts and Prayers to you
Darita

12-02-2009, 07:32 PM	#5
dchips1 Senior Member Join Date: May 2006 Location: Mesa, Az Posts: 219	Re: brain mets loss still continues Hi, I have been on steroids again since September, they can cause all sorts of issues. I know right now my face is so puffy that it was pushing on my sinus area and wound up feeling so congested. I have had WBR as well and 2 gamma knifes. I am not sure why your throat feels the way it does, try garling with warm salt water, eleveate head of bed and humidy the room your are in. I know for me the "panicky" lost feeling just add to the fatique, stress and world spinning around. Keep on the herceptin, supposably when you do WBR you fracture the Blood brain Barrier and it gets in there? Hang in there, most important of all is take some time for yourself, rest, eat and give yourself a few days to catch up, then look at making changes to your treatment team if needed. I am sorry that I can't offer any better advice. Steroids can make you deppressed, or agitated, fatiqued, short tempered and rapid non rational thinking.... forgetful and other health issues. Take something to relax if you need too. I got to the point I felt crazy because I was not sleeping at night. Good Luck Thoughts and Prayers to you Darita __________________ dx 1/06 IDC 2cm 38 at dx 2/06 L mast nodes 3/9+ SNB neg ER-/Pr - her2 + Stg 4 liver/pelvis 3/06-9/06Taxol/Carbo/zometa/Herceptin 3/07 6 brain mets WBR down to c-2 4/07 osteonecrosis jaw 1/08 mri new 9mm lesion right lower side 2/08 gamma knife 1 lesion 11/08 regamma 10/09 latent rad necrosis to brain met, 1/20/10 crani: lesion necrosis w active cells continue her add tykerb 1/11 NED just Ingrown toenail! YEAH GOD 8/11 Tykerb, herceptin weekly, elevated her2 levels, negative scans oct -march 11 new neuro deficits lower legs 3/12 2 spinal metsTykerb, Herceptin 04/12 4050cGY rads T 2-4 & T7-9 5/12 Brain,cervical lumbar clear/thoracic slight decrease 10/12 t 2-4 shrunk t-9 grew start Xeloda, 02/13 stop xeloda,5/13 on metformin, decadron, Tykerb, iv and IT herceptin 5/30/13 total #11 #2 of 80mg dose weekly. 9/13 100mg of IT her, IV hern, 750 mg tykerb, 3mg dec. last Mri T--3 SHRUNK t7-9 shrunk no edema. Left shift in CBC bone marrow BX negative. 10/13 Ct has shown Double left ureters with stones/cysts in them, after 3 births and lots and U/S iit takes cancer to figure out you have 2 smaller ureters going into 1 kidney! 12/13 Mri brain no new lesions, cervical and lumbar arthritis. Tspine lesion at T3 stable, T 7-9 GROWTH lots of pain 1/29/14 HIHO HIHO its off to Neuro surgery I go Life is Good when you wake up in the morning and take a breath and know that God has given me another day.