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Old 07-10-2013, 11:53 AM   #15
Lauriesh
Senior Member
 
Join Date: Oct 2005
Location: Lakeville, Minnesota
Posts: 199
Re: Not any kinds of scans will be done!

Catching mets early usually doesn't matter. While for brain mets, catching them when they are smaller and fewer can open up more treatment options, for liver, lung and bone, it doesn't seem to matter.

I was about 4 years out and I had a ct scan because of pain and my liver was clear. A year later, I had horrible pain and had another ct scan. I had two liver tumors, one was 11 cm. I have never seen anyone on this site or other ones that i am on have a tumor that big.
You would think my prognosis would be worse than someone who had a couple tiny ones. Yet, here I am. I have been Ned for almost 2 1/2 years and doing well, while sadly I have seen women diagnosed after me with smaller tumors who are now gone.
What matters is how you respond to treatment, not how early mets are found.
The important thing is to notify your onc of anything that doesn't go away after 2 weeks. back pain, stomach pain or bloating, cough, shortness of breath, etc.


Laurie
__________________
diagnosed stage 2- 3/2005
4.5 cm & 2+ nodes , er/pr- & HER2+
4 AC
12 taxol/Herceptin
Year of Herceptin
liver mets- July-2010
7 taxotere/Herceptin
RFA- Feb.2011
NED
U of Wa vaccine trial-oct 2011-Feb 2012
Herceptin/tykerb
Ned - 2 1/2 years
Herceptin & perjeta
Ned 3 years
Herceptin- reducing treatments , due to s/e, to 5-6 a year
NED- 3 1/2 years
Ned - 4 years
2/15- stopped herceptin - on no treatment
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