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AlaskaAngel · 09-07-2011, 10:47 AM

I'm sitting here looking at the handout that was provided by my cancer center to me when I attended the orientation "pre-chemo" Q/A session this past year (as a postchemo patient now 9 years out).There are several Q/A's dealing with S/E's in the handout, but still not a single Q/A mentioning any potential sexual aspects, and nothing other than vomiting, fatigue, etc.

When I attended the session, the nurse conducting the session commented that perhaps my "situation" was uncommon.

I think I will create a redesigned identical-appearing Q/A handout, to include some Q/A's about these intimate issues, and send it back to the department conducting the session, with copies to ALL oncologists at the cancer center AND the psych support center that limits appointments to those no more than 2 years out from treatment, AND to ALL the OB-GYNs connected to that hospital.

Anyone who might have similar concerns might try doing the same.

A.A.

09-07-2011, 10:47 AM	#10
AlaskaAngel Senior Member Join Date: Sep 2005 Location: Alaska Posts: 2,018	Seeking more genuine solutions to the problems I'm sitting here looking at the handout that was provided by my cancer center to me when I attended the orientation "pre-chemo" Q/A session this past year (as a postchemo patient now 9 years out).There are several Q/A's dealing with S/E's in the handout, but still not a single Q/A mentioning any potential sexual aspects, and nothing other than vomiting, fatigue, etc. When I attended the session, the nurse conducting the session commented that perhaps my "situation" was uncommon. I think I will create a redesigned identical-appearing Q/A handout, to include some Q/A's about these intimate issues, and send it back to the department conducting the session, with copies to ALL oncologists at the cancer center AND the psych support center that limits appointments to those no more than 2 years out from treatment, AND to ALL the OB-GYNs connected to that hospital. Anyone who might have similar concerns might try doing the same. A.A. __________________ Dx 2002 age 51 bc for granny, aunt, cousin, sister, mother. ER+/PR+/HER2+++, grade 3 IDC 1.9 cm, some DCIS, Stage 1, Grade 3 Lumpectomy, CAFx6 (no blood boosters), IMRT rads, 1 3/4 yr tamoxifen Rads necrosis BRCA 1 & 2 negative Trials: Early detection OVCA; 2004 low-dose testosterone for bc survivors Diet: Primarily vegetarian organic; metformin (no diabetes), vitamin D3 Exercise: 7 days a week, 1 hr/day No trastuzumab, no taxane, no AI NED