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Old 09-07-2011, 10:10 AM   #9
AlaskaAngel
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Join Date: Sep 2005
Location: Alaska
Posts: 2,018
Lies and Informed Consent

Not providing true informed consent is a very insidious form of lying. In regard to this issue, it is particularly vicious because it comes in the form of medical providers who are wearing the sheild of their license and educational qualifications, which provide the trojan horse for them to deal dishonestly and carelessly with intensely private matters under a trust relationship to begin with.

Given that it takes much organized developed research to come up with the treatments, is there any really good reason why, for example, they have not cared enough about the outcome to have adequately done the accompanying research for us to ameliorate the physical dryness problem? Or why, for example, there has not been research done to identify our personal pheromones prior to treatment so that possibly some manner of replacement to assist us afterward would be possible?

As suggested, they are unlikely to address this adequately unless WE make it a basic essential requirement for the development of treatments.

AlaskaAngel
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Dx 2002 age 51
bc for granny, aunt, cousin, sister, mother.
ER+/PR+/HER2+++, grade 3
IDC 1.9 cm, some DCIS, Stage 1, Grade 3
Lumpectomy, CAFx6 (no blood boosters), IMRT rads, 1 3/4 yr tamoxifen
Rads necrosis
BRCA 1 & 2 negative
Trials: Early detection OVCA; 2004 low-dose testosterone for bc survivors
Diet: Primarily vegetarian organic; metformin (no diabetes), vitamin D3
Exercise: 7 days a week, 1 hr/day
No trastuzumab, no taxane, no AI
NED
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