Went to DC this week for tx. # 3. Our 8 week CT was " fantastic " according to the Va. doc ! Met with aides to Sen. Harkin, chair of HELP Comm. They oversee the FDA. We'll see if they " HELP ". I think I gave them alot to look into. I told them " The problem started with the FDA last Summer, the solution must start with them. " Genentechs limiting of access will be looked at later.
Any of you with Advocacy contacts ( the higher up the better ), send our Jan. 5th Boston Globe article to them, and my e-mail,
pmccartin@comcast.net. I'd love to talk about how this FDA Administration is denying such an obviously superior drug to critically ill patients.
If they do this to one drug, they will do it with others - PI3 kinase inhibitors, PARP inhibitors, Avastin, vaccines in the near future.
We are all in this together ! Keep up the fight !