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Old 02-27-2012, 06:48 PM   #6
Lettik
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Join Date: Nov 2011
Location: San Diego, California
Posts: 16
Thumbs up Re: Blood clot from Herceptin?????

Elizabeth,
Glad to hear you are doing so well and my goodness, it would be a godsend to me to get my port out.

I do not have any suspicous cancer anywhere else. I had lung liesons, but I believe they are scar tissue from my asthma and are so small they quit doing the CT Chest. In March, I will have another CT abdomen for the liver liesons.

I hear that the Warfarin had to be closely regulated by blood tests and have a friend who couldn't wait to get off of it.

I have never heard of Folfox therapy. Are you er+or pr+ and Her2+? Sending my best healing energy to you and keep us posted.

Bless you,
Lettik
__________________
6/09 I found lump in left breast
7/09 & 8/09 Confirmed DCIS in breast and lymph nodes
9/09 Left breast mastectomy incl lymph nodes. er-/pr-, HER2+, Stage 3A.
10/09 Received phone call to schedule my liver biopsy. Stage IV extensive liver mets (!) ER/PR- Her2+++s
11/09 11/Port surgery
11/09 Weekly Taxol & Herceptin.
2/10 Completed 9 rounds -neuropathy in feet.
2/10 CT scan showed NO CHANGE.
3/10 PET scan came up NED.
4/10-10/10 Continued on Herceptin, 3 week cycle.
11/10 Blood test reveals Liver enzymes are high. CT, suggests progression
12/10 Changed doctors. TDM1 Trial or Tykerb/ Xeloda?
1/11 Tissue expander-could not qualify for trial.
2/11 -5/11 Tykerb/Xeloda -neuropathy -not working.
8/11Pulmonary Embolism -Now on daily shots
5/11-10-11 Everolimus & Navelbine &Herceptin trial Removed- Pul Emb, liver progression &fatty
10/11 -current, 3 wk Herceptin plus Tykerb
12/11- Abcess and infection upper lip- stopped Tykerb
01/12 CT Shows no progression in liesions, back on Tykerb
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