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Re: Blood clot from Herceptin?????
Elizabeth, I too had a blood clot, but mine was a pulmonary embolism .I did not have any symptoms though. It showed up on my CT. I was shocked. At the time, I was on Herceptin, and I was on a clinical trial, with Everolimus. It was a double blind study so I didn't know if I was on the drug or not. Anyway, I am at UCSD and my oncologist said that it wasn't from one specific drug, but that cancer patients are more susceptable to blood clots. I read everything I could to dispute this, by finding one drug to be the cause and couldn't. I am also on Lovenox daily injections and will be on these indefinately. Didn't like that at all.
I am not sure how old your post is? But what did you decide and how are you doing now?
Take care
Lettik
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 6/09 I found lump in left breast
7/09 & 8/09 Confirmed DCIS in breast and lymph nodes
9/09 Left breast mastectomy incl lymph nodes. er-/pr-, HER2+, Stage 3A.
10/09 Received phone call to schedule my liver biopsy. Stage IV extensive liver mets (!) ER/PR- Her2+++s
11/09 11/Port surgery
11/09 Weekly Taxol & Herceptin.
2/10 Completed 9 rounds -neuropathy in feet.
2/10 CT scan showed NO CHANGE.
3/10 PET scan came up NED.
4/10-10/10 Continued on Herceptin, 3 week cycle.
11/10 Blood test reveals Liver enzymes are high. CT, suggests progression
12/10 Changed doctors. TDM1 Trial or Tykerb/ Xeloda?
1/11 Tissue expander-could not qualify for trial.
2/11 -5/11 Tykerb/Xeloda -neuropathy -not working.
8/11Pulmonary Embolism -Now on daily shots
5/11-10-11 Everolimus & Navelbine &Herceptin trial Removed- Pul Emb, liver progression &fatty
10/11 -current, 3 wk Herceptin plus Tykerb
12/11- Abcess and infection upper lip- stopped Tykerb
01/12 CT Shows no progression in liesions, back on Tykerb
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