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I have lost 55 pounds, mostly in the first 8 or 9 months since my her2 diagnosis 2 years ago, and haven't gained any back, though I am now able to eat anything I want. It's just that I lost all taste for sweets, and seem to be able to eat only small amounts at a time. I too have fibromyalgia and lots of pain. I was on navelbine and herceptin the first 6 months, then just herceptin for 9 more months, though I have taken femara from the first also. Am now NED. I don't know if there is any rhyme or reason to why some people gain and some lose! This is an interesting survey and I hope it gives us a clue! Hugs, Tricia
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