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Old 12-15-2011, 02:41 AM   #5
michka
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Join Date: Feb 2007
Location: Paris, France
Posts: 858
Re: Chemo before surgery - anyone do this?

Hi Steph. I had chemo before surgery and then radiation. What I was told is that it made no difference in what order you did it and that the advantage was going to be to save my breast. The tumor was 3cm. In the end the tumor only shrank to 2 cm after FEC and did not move during the 12 weeks of Taxol+Herceptin. So I had a mastectomy. The only advantage was to be able to see that Taxol+Herceptin did not work.The oncs had nothing else to offer then since I had no metastasis at the time. But for me it was a disaster. I had postponed the mastectomy by 6 months which I believed was bad because chemo did not really work. And I knew chemo did not go after the bad cells in my body. In the end the metastasis came out 4 years later.
My advice is to have the tumor out fast and then do chemo.
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08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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