HER2 Support Group Forums - View Single Post - Palliative Care... this time 'numerous' brain metastases...

hermiracles · 09-23-2008, 07:55 AM

Hello my Sisters and Brothers.... I'm home again from another stay in Palliative Care... which again has been good for me. It's just unfortunate that the first time I was there they found 'numerous' lung metastases and this time 'multiple' cerebral metastases! Not much 'good' news but the care is very good!

I'm still getting around with my wheely walker and enjoying spending time with hubby and our beautifull bub-bubs.

On the 3rd October I am booked to go to Brisbane for raditation therapy to my (whole) brain. We may be there about 2 weeks and then home hopefully to commence on Tykerb/Xeloda -- thats the plan actually - we'll see what else the Higher Power has planned for us! ;-)

I've looked a little bit into the difference between whole brain vs (is it?) cyberknife... the Docs reckon there is some reason why whole brain would be better for me and besides the wait for cyberknife is a lot longer and I dont know if I have that much longer??? One day at a time :-)

I read here everyday when I can - dont get much chance to post - but I really appreciate everyone's courage and knowledge and humour!

Have had an interesting time processing some (extended) family dramas - coming out the other side - it helps spending time with old friends and listening to my bubbas laugh as the wind blows on their faces.

Blessings all
Hermiracles

PS Im still trying to figure out how to set up a photo album here, for myself - if anyone has any quicktips that would be great! LUVYAS!

09-23-2008, 07:55 AM	#1
hermiracles Senior Member Join Date: Oct 2007 Location: Australia Posts: 309	Palliative Care... this time 'multiple' brain metastases... Hello my Sisters and Brothers.... I'm home again from another stay in Palliative Care... which again has been good for me. It's just unfortunate that the first time I was there they found 'numerous' lung metastases and this time 'multiple' cerebral metastases! Not much 'good' news but the care is very good! I'm still getting around with my wheely walker and enjoying spending time with hubby and our beautifull bub-bubs. On the 3rd October I am booked to go to Brisbane for raditation therapy to my (whole) brain. We may be there about 2 weeks and then home hopefully to commence on Tykerb/Xeloda -- thats the plan actually - we'll see what else the Higher Power has planned for us! ;-) I've looked a little bit into the difference between whole brain vs (is it?) cyberknife... the Docs reckon there is some reason why whole brain would be better for me and besides the wait for cyberknife is a lot longer and I dont know if I have that much longer??? One day at a time :-) I read here everyday when I can - dont get much chance to post - but I really appreciate everyone's courage and knowledge and humour! Have had an interesting time processing some (extended) family dramas - coming out the other side - it helps spending time with old friends and listening to my bubbas laugh as the wind blows on their faces. Blessings all Hermiracles PS Im still trying to figure out how to set up a photo album here, for myself - if anyone has any quicktips that would be great! LUVYAS! __________________ 2003 L/DCIS –> LWE: High G./Comedo - 6 nodes clear 6 wks Rx 04/07 2 miracles born ~ very grateful 06/07 Susp areas L/b 09/07 Stage 2 bilat. mastectomy R/ b. clear extens DCIS/IDC Paget’s 8 nodes clear ER(<5%) HER2+++ CT clear 11/07 Portacath - FEC 15/11/07 Stage 4 Emerg op - hip replacemt #NOF bone mets H/Taxotere 12/07 Rx to 'spots' on spine/R/hip/femur 3wkly H 2008 H+T mets to rib/sternum? Aredia CT clear! Cont. H + Aredia 07/08 1 wk Palliative Care - mets to lungs + ?1 to brain 09/08 Stop H complete Epirubicin 1wk PC new brain mets 10/08 2wks WBR 1wk PC 22/10/08 Tykerb/Xeloda 12/08 6 CEREBRAL METS COMPLETELY GONE! Rib mets down to <1cm. 01/09 Tumour markers normal! Rx to L/arm 03/09 LUNGS CLEAR (ALL NODULES GONE!), brain clear, liver clear. Bones stable! ~ THANK YOU GOD 07/09 Repeat CT Scan ~ ALL organs clear apart from bones which remain stable. I walk in gratitude. *************** Last edited by hermiracles; 09-23-2008 at 09:44 AM..