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Roz · 10-28-2007, 11:47 PM

Hi, I hope someone can give me support/advice. I have been on T/X since 5th October and have had diarrhoea (I'M finally going to learn how to spell the word, I 've used it so much lately) every couple of days. I take Immodium, tried slippery elm bark, and still it comes. Like someone has turned on a tap. I have finished one cycle and just begun the next when I saw my onc. She says that she thinks I should come off it for a week, and then go on a reduced dose. She says 3 Tykerb a day and 3 Xeloda for a while and then increase it. Has anybody else used this strategy? I think at present I really have no choice. I am sleeping a couple of hours through the day as well as 8 hours at night!! I went out for a meal last night, I was careful what i had, but it felt like an effort getting to the venue. I'm not normally like this and I HATE IT!!
Regards
Roz

10-28-2007, 11:47 PM	#1
Roz Senior Member Join Date: Oct 2005 Location: Sydney Australia Posts: 105	T/X combo has knocked the socks off me. Hi, I hope someone can give me support/advice. I have been on T/X since 5th October and have had diarrhoea (I'M finally going to learn how to spell the word, I 've used it so much lately) every couple of days. I take Immodium, tried slippery elm bark, and still it comes. Like someone has turned on a tap. I have finished one cycle and just begun the next when I saw my onc. She says that she thinks I should come off it for a week, and then go on a reduced dose. She says 3 Tykerb a day and 3 Xeloda for a while and then increase it. Has anybody else used this strategy? I think at present I really have no choice. I am sleeping a couple of hours through the day as well as 8 hours at night!! I went out for a meal last night, I was careful what i had, but it felt like an effort getting to the venue. I'm not normally like this and I HATE IT!! Regards Roz __________________ diagnosed June 03. Rt sided Inflammatory BC in rt lower quadrant. 7cm tumour. Also 3 DCIS. 3 rounds of EC, mastectomy with axillary clearance (12 nodes+ of 19). 1 more EC. 5 weeks of rads, with weekly booster to attack skin lymph involvement. 4 cycles of Taxol. Tamoxifen.Recurrence December 04, Herceptin started early Jan05,+ Arimidex. NED 26 mths. Recurrence early Mar07. Taxol added to Herceptin. NED. Will have total of 6 cycles, then Aromisan and Herceptin. Early Oct 07, recurrence to the pesky right upper lobe, with some pleural thickening upper rt hemithorax. T/X now the treatment. May 2008, Taxatere and Herceptin for lung recurrence