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I too come to this site to be inspired and am grateful to all of you for sharing your successes. A little over a year ago I was 30 years old, diagnosed with widespread metastatic disease and told that I had very little time left. I was frightened, angry, and sad beyond belief. And then I found this site. I began reading the success stories and I began to believe. You made me a believer and contribute more than you could ever know to the eternal hope that I carry in my heart. I cheer for you when you have success and my heart aches for you when things are not so great. I love to be able to share my good news and success with you and plan on doing so for a long time to come. Just had a PET/CT last week and look forward to updating you with good news once again when I get the results.
Even though we are mostly strangers, I consider you my "family" and am grateful to Joe and Christine for all they do to help us in this topsy turvey journey.
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4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.
Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial
Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED
Send me a PM if you'd like to follow my journey on Caringbridge.
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