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waterdreamer · 08-02-2014, 12:36 AM

I am currently not on any treatment. I have some suspicious areas in my right lung, but I have decided to just watch them. BTW, I was in Maui with my family 3 weeks ago and did two deep scuba dives, and my lungs did just great, despite any activity picked up on the PET/CT. I am doing Rick Simpson Oil, which I got from a friend about two weeks ago. So I am only two weeks along in this process. The oil comes in a syringe and is very dark colored. I was warned to start off taking an amount the size of half a grain of rice. The strain in Indica, which makes me very sleepy, so I am now only taking it at night when I go to sleep, as it makes me too tired during the day, and I do not feel safe while driving. It has increased my appetite. I have just switched to a new doctor, and he is not in favor of cannabis use, as he had a patient that took too much and almost ended up in a coma, he survived. I think the lesson is that when you do get the oil, that you start off very slowly with a half a grain of rice serving and work yourself up to the recommended dosage. It is definitely a destressor, and my doctor does like it for treating the side effects of chemo (nausea, lack of appetite, and insomnia). My only concern with cannabis use, is how it affects us cognitively. My next scans are at the end of September and then I will have a better idea of how effective it has been with healing my lungs. I am only taking evening primrose oil and RSO when I go to sleep at night, and that is it.
Wishing everyone a wonderful weekend.

Fern

08-02-2014, 12:36 AM	#9
waterdreamer Senior Member Join Date: Jan 2010 Location: Thousand Oaks, California. Posts: 199	Re: Medical Marajuna Girls I am currently not on any treatment. I have some suspicious areas in my right lung, but I have decided to just watch them. BTW, I was in Maui with my family 3 weeks ago and did two deep scuba dives, and my lungs did just great, despite any activity picked up on the PET/CT. I am doing Rick Simpson Oil, which I got from a friend about two weeks ago. So I am only two weeks along in this process. The oil comes in a syringe and is very dark colored. I was warned to start off taking an amount the size of half a grain of rice. The strain in Indica, which makes me very sleepy, so I am now only taking it at night when I go to sleep, as it makes me too tired during the day, and I do not feel safe while driving. It has increased my appetite. I have just switched to a new doctor, and he is not in favor of cannabis use, as he had a patient that took too much and almost ended up in a coma, he survived. I think the lesson is that when you do get the oil, that you start off very slowly with a half a grain of rice serving and work yourself up to the recommended dosage. It is definitely a destressor, and my doctor does like it for treating the side effects of chemo (nausea, lack of appetite, and insomnia). My only concern with cannabis use, is how it affects us cognitively. My next scans are at the end of September and then I will have a better idea of how effective it has been with healing my lungs. I am only taking evening primrose oil and RSO when I go to sleep at night, and that is it. Wishing everyone a wonderful weekend. Fern __________________ Breastfeeding when diagnosed with Her2+ May 2008 Oct 2008 Double mastectomy 22/28 lymph nodes positive Decline chemotherapy (decision I regret) Nov 2009 Mets to lungs and bones. Dec 2009 Start Taxotere and Herceptin, T1, T3 heal completely and lungs are clear, T2 and first rib have lytic lesions. First rib becomes sclerotic. Considered stable. May 2011, Onc calls progression and I cross over from comparison arm of clinical trial to TDM-1 Brain scan in Sept 2011 showed small tumor in right cerebellum, did Novalis radiation. Feb 2013 < 1cm tumor in left frontal lobe. Did Novalis in March and latest scan shows no sign of brain metastasis. Aug 2013 did 36th round of TDM-1 Due to TDM-1 side effects, shortness of breath, and difficulty getting my balance when getting out of bed, agreed with my oncologist to stop TDM-1. Took a six week break, bone scan showed small uptake on left first rib. CT showed hypodensities in liver (too small to biopsy) and small nodule in lungs (mediastinal). Started Navelbine weekly. Did one round with Herceptin. Skipped next 2 rounds, due to neutropenia. Next chemo 7th Nov - have had 3 Neupogen shots, so WBC should look better... Did not tolerate Navelbine well. December 2013 scans show no sign of active cancer. March 2014 - currently only on Herceptin - brain MRI clear, PET/CT two nodules in right lung show uptake May 2014 - stop Herceptin. Sept 22, 2014 Brain MRI clear :) PET/CT Progression in lungs. Sept 2014, Xeloda, Tykerb and Herceptin. Nov 2014 - Decide to take a break from all treatment. May 2015 - Brain met radiated with Novalis July 2015 - Have progression in right lung. Sept 2015 - Perjeta and Herceptin alone after a 9 month break from all treatment. Nov 2015 - Thoracentesis 1500ml removed from right lung. Dec 2015 - Two tiny 1mm brain mets radiated in right cerebellum. Feb 2016 - Thoracentesis 2200ml drained from right lung Feb 2016 - Stopped Perjeta and Herceptin and started back on Kadcyla as I had no previous progression on it. After 1 cycle of Kadcyla markers begin to drop. On second cycle add Keytruda. March 2016 - Thoracentesis 1650ml drained from right lung. April 2016 – Thoracentesis 1500 ml drained from right lung. June 2016 – CT scan shows progression in right lung, as well as moderate pleural effusion requiring Thoracentesis. June 2016 – Decide to stop Keytruda, and will do chemosensitivity test through Rational Therapeutics. Plan to continue on Kadcyla for next two cycles. July 2016 - Start weekly Abraxane with Herceptin. WBRT with hippocampal sparing, Taking Namenda. 15 sessions over 3 weeks. Aug - Dec 2016 - 2 infusions of Navelbine, very hard on my body and still dealing with anasarca (generalized edema) 1 infusion of Havalen My doctor wants to put me on hospice. Dec 23rd 2016 - I am granted compassionate use of Neratanib. May 31st 2017 - still on Neratinib, feeling good.