Thread: Need input!
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Old 02-06-2017, 03:12 PM   #87
Juls
Senior Member
 
Join Date: Mar 2014
Location: UK
Posts: 563
Re: Need input!

Hi Tiffany

Thanks for reply.

I have already been on a trial with Perjeta & had progression after approx 2 years on it. To be accurate I had nearly 3 years on Perjeta but that was because 2 bone mets missed for a year on 4 CT's(?) so perjeta continued. Got 12 months more that I should have had! Hopefully it did help even if just a little.

I haven't been offered anything else. The only reason that an AI mentioned was because I said I'd hoped for no treatment change until end of April (after my Daughters wedding in 11 weeks) & Onc said she could give me an AI to tide me over till then! Personally I don't think an AI only for 3 months is a great option. It's a no go anyway because trial closes in less than 8 weeks.
Once again I feel that they had already decided my treatment. It had already been discussed with everyone except me.
I know its my decision in end but I think all options should have been given.
I do think that trial is my only option - I want TDM-1. Just concerned about side effects Apparently trial drug (if I get it) has "weird s/effects!!

Got appt with new trial Doctor on Thursday so will find out a bit more!
Juls
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