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Krista & Susan,
Thank you also for your replies. Frankly, if I were highly triple positve I would not have so much concern with only taking tamoxifen as hormonal therapy. I am primarily concerned that tamoxifen may be useless for me due to my negative PR status.
I need to update my signature to indicate that I am apparently now a "double positive"....but I'm not doing that until my path is re-reviewed by an outside institution.
Krista- one more thing...I don't love tamox either but it is better than chemopause for me. In a perfect world I would love for someone to tell us that hormonal therapy of any sort is useless and we can quit taking all these drugs. Not fun.
Cheers! (I'll have a glasss of red wine now and chill).
Janelle
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Janelle
Diagnosed October 2006 at age 37 wtih grade 3 IDC and high grade DCIS
Stage 1c triple positive, no node involvement but
vascular invasion
multifocal disease
Lumpectomy November, 2006
A/C every 3 weeks (started Jan., 2007 and finished March 2007); followed weekly Taxol (finished June 2007) concurrent with Herceptin (finished March 2008);
Bilateral Mast with immediate recon in Sept 2007; finished recon Dec. 2007
Started 5 years of tamoxifen Nov. 2007; started peptide vaccine clinical trial at MD Anderson October 2008 and finished active part of trial in April 2009 (monthly injections of AE37 peptitde (HLA type specific) with GM-CSF or GM-CSF alone depending on if I was in experimental or control group); started Zometa infusions June 25, 2009- 4mg every 6 months for 3 years (taking it "off-label" to try to prevent mets)
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