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Old 05-22-2014, 01:31 PM   #3
Adriana Mangus
Senior Member
 
Join Date: May 2006
Location: California
Posts: 668
Re: Just Starting Our Fight, Help.

Hi new member, you have come to the right place for assistance.

Welcome to Her2+support.org

We all in many ways donate time and resources to many organizations that deal directly with research to find a cure for women affected with breast cancer type Her2+. Frankly, I find it tacky to open the page and the first thing to see is the purchase of a shirt.

BTW

I believe, based in my many years of dealing with this medical issue- please read my signature, that your wife is in good hands with her doctor being proactive by placing her in herceptin for one year after she finishes the required chemo treatments. And congratulations on the early BC detection, that't the new way to treat many types of cancer, with new genetic tests coming on the market, why not use them, they are available to all of us. Many of us on this site wish we had had that option before our diagnosis.

Again, welcome to our organization, we are compassionate ladies who have had in the past and continue to struggle with this disease. Please don't hesitate to ask anything regarding Stacy's health, treatments, diets, frustrations, etc. You will find tons of information from our dedicated sisters, most importantly we understand each other.

Take care and stay positive.

Adriana
__________________
1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--
NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.

2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.

2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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