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Not the end of the world
I have been feeling low since last week but I try to tell myself this is not the end of the world, so move on, move on !
Not a break ever since I had the huge surgery last August. Since then I have had several surgeries to clear margins and 2 rounds of radiation as seen in my signature. I try to live a normal life and going to intense treatment has been such a routine for me that I consider not going to treatment abnormal. Anyways I planned a vacation to Alaska that's coming in 2 weeks and a cruise to Alaska is on my bucket list. This was planned whist I was getting radiation in February and one week off treatment seems ok. I also planned a 3 week trip to visit my family in China with my 8 yr old daughter who hasn't seen my family for almost 5 years after I got sick. She wants to see the baby pandas there. Tickets were bought but I was smart enough to add a travel insurance just in case. I still want to go, I do even its gonna be awfully hot and humid there in July.
Anyways as I'm almost healed from the 2nd round of radiation which ended last Wednesday, I noticed 3 new red rashes just right outside radiation port. My guts tell me they look suspicious. So I made an appointment to see my surgeon next Monday, my radiologist next Tuesday. I'm also getting a ct scan and brain MRI today. Tumor markers have all been within normal range so I'm hoping please do not give me more than I can handle.
Not sure what the plan will be. We will have a better idea once all the test results come out. I'm just so worn from non stop skin mets. I have heard they just keep popping up. They are definitely stubborn.
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1/11 age 36 DX
ER/PR-, Her2 +
TCH*6, Herceptin
BMX with immediate recontruction 5/2011 Lattismus Flap- Dx stage 3c 10/23 nodes
9/11 Radiation
3/12 Local recurrence to skin stage IV
Whole body scan CLEAR
4/12 Tykerb & Xeolda Skin mets slowly regressing
8/12 PET & Brain CT Clear
5/13 Skin mets progressing
6/13 PET scan chestwall recurrence in contralateral anxillary,internal mammary and ipsilateral subpectoral nodes
6/13 kadcyla
10/13 whole body scan -clear NED. previously resolved skin rash gone but 3 new lesions. Biopsy confirmed for skin recurrence
11/13 to 02/14 tykerb & herceptin
02/14 add abraxane/gemzar, 2 weeks on 1 week off at reduced dose
05/14 whole body PET clear/ brain CT clear but skin mets are getting worse, ready for new chemo
05/14 navelbine perjeta herceptin
07/14 skin mets progressing red rash worse
08/14 wide local excision with diep flap to close wound. Final path shows 2 positive margins showing inflammatory carcinoma Going back to surgery in 2 weeks
09/01/14 resection- clear margins
3 weeks after 2nd surgery, a new nodular rash found near drain incision with 2 small red spots behind the chest wall biopsy on 10/1. Positive for breast cancer
Radiation 11/2014 with xeloda then weekly cisplatin
11/14 brain MRI clean
12/14 finished 33 radiations burnt and very painful. Bedridden for 1 week
12/14 t current Herceptin and perjeta only
02/15 rash on upper back right side skin mets radiation planned
02/15 staring electron radiation *35
Stopped at 30 due to severe skin burn, resumed 10 days later
05/15 red patches appeared in between previously radiated area, skin mets. Ct and brain Mri clear. Simulation planned, radiation to start after trip to Alaska.
05/24 new spot identified in scar line on previously radiated reconstructed breast- electron on both side chest wall area and scar line
07/15 multiple skin and lung recurrence begin halaven
11/15 cough much better but very tired on halaven and starting to see some new red skin blotches-suspicious
11/15 heading to China for immune therapy
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