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Old 06-29-2010, 05:53 AM   #2
michka
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Join Date: Feb 2007
Location: Paris, France
Posts: 858
Re: Half of breast cancer patients treated with antihormonals are noncompliant ie, do

"We were surprised to see that so many young women stopped treatment early"
I can't believe that doctors who prescribe these products can say such things! They perfectly know what total deprivation of estrogen does.

These medications can save your life but they sometimes have severe side effects. I do hope one day they will find another way to protect us than to make us age in an accelerated way, dry us up and make us suffer from joint pain and other problems such as loosing our hair but having it grow all over our face, putting us at risk with cardiovascular problems; putting dozen of pounds on, impairing our brain; killing our sex life etc...
I do understand that we must suffer through all that to survive but I can understand that some women stop. I would like these Doctors to feel just one week what I feel.
They should be working on helping with these side effects and not denying them.
I am sorry. I am angry. This is not positive but I am not advising not to take these therapies. I am happy they exist. I am just mad to read that such eminent doctors say they are "surprised".
Michka
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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