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Hi
Even though I have no experience with what you are seeking, I do have a good memory of the board. We do have a member who posts every so often, Johanna Johanndotter (Iceland) who did have intracranial/CNS Herceptin injections that worked well. Look up her posts and perhaps privately contact her for more information. She is the only one who got someone to do this for her and it worked out well for her. If what you are doing now doesn't work out, I bet Cancer Center of America would try it since they do try chemo this way.
Good luck and please keep us posted.
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Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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