Steph and Joan, thanks for your knowledge and more hope for me. I really hang on to your words on days like today. I went to the Doctors today and they seem to think it's progression. They can't say for sure. They say the tumour is so close to the brain stem, that they are not sure whether or not they want to biopsy. They said that 5 doses of radiation may be the recommendation, and that I go on Xeloda (? I think). I am interested in IT herceptin, but I need to do my research, as I'm not sure what the criteria is. I'm scared, sad, but trying to stay possible, especially reading what you ladies have gone through.
Not sure what else to say, other than I don't know what the heck is going on with me right now. Doctors are having a chat about me at 1pm EST, and he will call me back to let me know what they think. It's my decision, but I tend to go with the doctors, but that scares me too. Feeling a bit lost and confused.
Much love. And no this isn't some cruel April fools joke. That would be awful!
Love Jilly