HER2 Support Group Forums - View Single Post - Please help! I'm really scared

Sheila · 10-02-2008, 03:53 PM

Pam, I know your fear and frustration...but do let the cardiologist know you are on Avastin...I had to wait 6 weeks after stopping to have a root canal done...so check with the cardiologist before you have any tests as it can cause bleeding and poor healing. I can't remember if you are still on the hercepin? It too can cause the LVEF to drop...what about a muga to compare it to....I am still having slight problems with the shortness of breath, but I had a muga 4 days after my last herceptin and it was 63%...which was down slightly from my echo a year ago. I took 1 Lasix 20mg the day after treatment and it seemed to help...so maybe mine was fluid. See if they will give you a diuretic to see if it helps as Taxol can also cause this fluid buildup....you are in my prayers that they find nothing wrong with your heart and they can eliminate this problem through other means....sending a big hug to you Pam....this disease really knows how to kick us when we are down!

10-02-2008, 03:53 PM	#2
Sheila Senior Member Join Date: Aug 2003 Location: Morris, IL Posts: 3,507	Pam, I know your fear and frustration...but do let the cardiologist know you are on Avastin...I had to wait 6 weeks after stopping to have a root canal done...so check with the cardiologist before you have any tests as it can cause bleeding and poor healing. I can't remember if you are still on the hercepin? It too can cause the LVEF to drop...what about a muga to compare it to....I am still having slight problems with the shortness of breath, but I had a muga 4 days after my last herceptin and it was 63%...which was down slightly from my echo a year ago. I took 1 Lasix 20mg the day after treatment and it seemed to help...so maybe mine was fluid. See if they will give you a diuretic to see if it helps as Taxol can also cause this fluid buildup....you are in my prayers that they find nothing wrong with your heart and they can eliminate this problem through other means....sending a big hug to you Pam....this disease really knows how to kick us when we are down! __________________ "Be kinder than necessary, for everyone you meet is fighting some kind of battle." Hugs & Blessings Sheila Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications) Core Biopsy 2/22/02 L. Mastectomy 2/25/2002 Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg 6/2003 Reconstruction W/ Tissue Expander, Silicone Implant 9/2003 Stage IV with Mets to Supraclavicular nodes 9/2003 Began Herceptin every 3 weeks 3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes 3/2007 Added back the Xeloda with Herceptin for continued mets to nodes 5/2007 Taken Off Xeloda, no longer working 6/14/07 Taxol/Herceptin/Avastin 3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee 5/29 2008 Back on Taxol w Herceptin q 2 weeks 4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve 5/2009 Begin Rx with Navelbine/Herceptin 11/09 Progression on Navelbine Fought for and started Tykerb/Herceptin...nodes are melting!!!!! 2/2010 Back to Avastin/Herceptin 5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate Pericardial Window Surgery to Drain Pericardial Effusion 7/2010 Back to walking a mile a day...YEAH!!!! 9/2010 Nodes are back with a vengence in neck Qualified for TDM-1 EAP 10/6/10 Begin my miracle drug, TDM-1 Mixed response, shrinking internal nodes, progression skin mets after 3 treatments 12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments 2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!! 7/5/11 begin Gemzar /Herceptin for node progression 2/8/2012 Gemzar stopped, Continue Herceptin 2/20/2012 Begin Tomo Radiation to Neck Nodes 2/21/2012 I CELEBRATE 10 YEARS 5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression 6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin