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Re: New Oncologoist needed - Final Straw
Maybe so but if the FDA new in 2013 it worked well then they new the year before too. It is just awful that something like that could be a game changer in someone's life but it all comes down to Insurance and the FDA.
My Herceptin was over 10 grand a month and it is still perplexing to just wait and see and hope it worked. Also, why didn't he check or do something after 2 or 3 treatments and change something up because it was not working. After all 6 treatments it just got worse, so I don't know maybe it is no one's fault or maybe he could have checked and done something different. When you are right smack in the middle of it all a person can not think past just getting through what is in front of them. Now, with my collateral damage I wonder about could I have done something different and didn't know. Did my ONC just think I was a number among many??? I put up with alot of stuff with this treatment center, but I was always just trying to keep my head above water with no energy to question which is normally my personality.
I know I am complaining the last couple of days, but I have been exceedingly frustrated. But as my Grandma would say...This too shall pass.
Laurish are you doing alright with side effects from Herceptin and Perjecta together???
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myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant
9/2012 Pre-adjunctive TCH chemo.
12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.
12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+
2/27/13 6 weeks of IMRT radiation finished
2/2013 Started on Tamoxifan 5 years.
8/2013 will take last Herceptin, 17 treatments total every 3 weeks.
BRCA1 & BRAC2 - Negative
August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.
3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
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