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Old 03-14-2019, 01:35 PM   #3
Cathya
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Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
Re: bad, mediocre, or gifted oncologists

I did have one awfully frustrating and potentially deadly experience with an oncologist. When I was diagnosed with ovarian cancer it had been almost 14 years since my original diagnosis of breast cancer but it had been an advanced one....stage 3c. I underwent the operation and chemotherapy for the ovarian and was monitored (and still am) by the CA125. As it started to increase I was given an abdominal CT with negative results for mets. This continued and my CA125 kept going up. The ovarian oncologists were a team so I didn't see the same one each visit. I kept bringing up my breast cancer but each one seemed to ignore it. Finally I got an older oncologist who, when I brought it up again immediately went to the notes and order a chest and abdominal CT. It was then the mets in my lungs were found. A biopsy was taken and it was discovered to be breast mets not ovarian and I have now a wonderful bc oncologist and am on a great treatment. Because the normal tm for ovarian was rising they didn't think it could have anything to do with bc however, if you have tumour in the pleura of your lungs this tm can be used. I don't know if things work this way in the states but here in Ontario each different cancer has a different oncology specialist who do not really overlap. Ultimately my luck changed when I had the senior surgical oncologist from the ovarian team use her guilty influence to get me an appointment with the most brilliant research bc oncologist.

Lesson very definitely learned.

Cathy
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Cathy

Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18


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