HER2 Support Group Forums - View Single Post - NEW POOPY UPDATE to NEW update on chrisy...scanxiety replay on the horizon

Barbara H. · 02-06-2012, 03:27 PM

I agree with your doctor. I was the first HER2 member to receive TDM-1, but it was delayed several months from around Feb. to Sept. The trial had closed and I needed to wait for another to open. I couldn't have any treatment during those months. The bone mets were growing in my hip, and I was in significant pain. So, Christy, the reason I did not qualify for the first trial was because the machine was malfunctioning and gave an incorrect muga score that was too low. I also had that to worry about until I learned the truth several months later.

I feel that all will be well with you again soon, and you will reach NED!!!
Best,
Barbara

02-06-2012, 03:27 PM	#7
Barbara H. Senior Member Join Date: Sep 2005 Location: Newton, MA Posts: 951	Re: NEW update on chrisy...scanxiety replay on the horizon I agree with your doctor. I was the first HER2 member to receive TDM-1, but it was delayed several months from around Feb. to Sept. The trial had closed and I needed to wait for another to open. I couldn't have any treatment during those months. The bone mets were growing in my hip, and I was in significant pain. So, Christy, the reason I did not qualify for the first trial was because the machine was malfunctioning and gave an incorrect muga score that was too low. I also had that to worry about until I learned the truth several months later. I feel that all will be well with you again soon, and you will reach NED!!! Best, Barbara