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Re: Evidence Mounts on Heart Failure After Trastuzumab in Breast Cancer Survivors
I will be watching this site and thread closely now. My fiance' is to receive t-dm1 therapy as part of expanded access program, I believe.
Tomorrow 9/14 she will receive multiple baseline tests, and if there are no issues uncovered, proceed with infusion tomorrow afternoon of this t-dm1 treatment.
The heart damage debate has my attention. She had Herceptin only, about a month ago. Unlike the prior times she received it, for the first 24 hours she had nausea, chills, fever around 100, and 'chest pressure'; she also felt pretty rotten for about a week. I believe it was a mild infusion reaction.
The doctors will discuss this tomorrow with her. Jen is aware of the conversation about heart damage; however at present wants to move forward.
It is really scary to be in this place; so many unknowns and it seems like such a dart-throwing approach to medicine; I still want to believe the underlying cause needs discovered; that all these chemos are not only just bandaids; they might possibly be aggravating some cancers. There is not enough focus on the whole body!
I believe a rigorous exercise program and super-organic diet should be mandatory for anyone who fights a cancer, of any kind. There are too many variables out there to rely on a single treatment or small variety of treatments as a cure.
I pray those involved are making decisions based on a cure; not on making their mortgage and car payments.
Bob
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Bob
Jen's Guy
-11/09 Pregnancy
-12/10 lump in right breast found
-02/11 Needle biopsy pos for HER2 stage 1
02/10-07-10: Taxol 8 weeks
07/21/10 healthy baby Molly born
08/10 - 05/11 Chemo only: adriamycin and Citoxan
then? Herceptin, localized radiation
-05/11 Stage 4, lung mass
-07/30/11 CLINICAL TRIAL: EMILIA/TDM4370g
-08/6/11 Emergency room visit for severe stomach pain; prognosis in progress
09-11 Prognosis: too much Xeloda (cabecitabine)
-01-16-12 Middle lobectomy for tumor
02-7-12 Frequently tired and nauseous though not on any chemo for 8 weeks
-05/2012 clear Pet Scan/MRI post lobectomy
08/2012 Scan reveals progression to lung and liver.
8/24/2012 resume Herceptin; Tykerb pending. First round created heavy chest, chills, and fever (Reaction). Heart test in 3 weeks.
9/4/12 nausea.
09/14/12: T-DM1 Candidate testing; start trial
10/18/12 2.5 cycles in to TH3RESA study; lots of chest pressure; signs of bruising; infusion effects last 3-5 days
2/2013 5 weeks whole brain radiation therapy due to 8 visible brain tumors
9/12/13 Cyberknife treatment for three tumors
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