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Re: Swollen eyelid, face and neck..in the morning
As it turn out I have also a blood/cancer clot. So they plan to put a stent on tuesday then they want me to stay on heparin for 5 weeks ( not allowed on TDM1, I checked) so they said two weeksmin and aspirine (<235mg is allowed don't know if that enough). The scan of the chest was done at 13 days interval and there are new tumours in the breast and the biggest tumours has grown from 4.7 to 5.1 and now my supra clavicular node are growing to 2.2 the biggest..
I try not to think about anything I have told them that I wanted a brain scan that I am getting on Monday, so i can see if it is worth continuing fighting to be on the trial and if I am not excluded anyway because of brain mets, I pray pray pray that I get that break and get to have a summer in relative health and mobile.
Love, hope and life
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35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies
Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..
superior vena cava blocked: stent but face remains puffy
April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.
Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.
'Under no circumstances should you lose hope..' Dalai Lama
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