Marie,
I understand the tough challenges for you and Ed with those brain mets. Sometimes a list geared towards brain tumors could help. (But don't leave our list!!) In case you have not checked, a large one I know of called BRAINTMR, has the following email address to send posts to
BRAINTMR@mit.edu and for info or assistance, see
http://www.braintrust.org/braintmr.htm
or contact mailto:
braintmr-request@mit.edu
They may know of other lists too. Warmest wishes, Lida