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Old 08-30-2012, 02:58 PM   #25
Andrea Barnett Budin
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Join Date: Oct 2005
Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
Posts: 1,904
Re: HELP!!!!!! Pertuzumab denied by insurance! iN PANIC MODE AND DON'T KNOW THAT TO

Yes, Chrisy, Breathe. In. Hold. Out. And again and again. Becky is wise. Never lead with anger. Befriend your person on the other end of phone.


I searched for you and came up with Perjeta Access Solutions (below). I do know that when my insur co denies me my husband gets on the phone. We've learned that sometimes, believe it or not, you have to realize you're talking to a person who is a robot or has the IQ of a penny and you just say, Thank you and hang up. Call right back and you can get a real human who becomes hell-bent on helping you.

The insur co will tell you exactly what is required for you to appeal. A letter and/or a call from your doc. Sometimes sev calls from your doc. The squeaky wheel thing is key.

Remain calm. Know that we are sending all the necessary positive energy you will need to get through this emergency. Help is on the way.

In. And hold. And out. Do not stop breathing... Keep thinking of Yosemite and your favorite spot. Go there (in your head). Recapture the feelings you had before. Bring them to you in this moment.

Much love,




PERJETA Access Solutions®

PERJETA Access Solutions helps to resolve specific access and reimbursement issues for individual patients every day. Our dedicated Specialists help bring patient treatment and practice solutions together.
Our staff can help:
  • Resolve benefits and coverage issues
  • Find co-pay assistance for underinsured patients
  • Provide free medicine for uninsured patients through the Genentech® Access to Care Foundation
  • Individualize services to meet patients' specific needs
To learn more, please contact your Genentech Clinical Oncology Specialist or call 1 (888) 249-4918 (weekdays 6AM-5PM PST), or fax 1 (888) 249-4919.
Additional resources


Andi
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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