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Old 06-02-2016, 12:05 AM   #23
Pamelamary
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Join Date: Apr 2012
Location: Melbourne, Australia
Posts: 494
Re: Looking for hope

Hi Benk,
I am another living well with stage IV, over 4 years since diagnosis with mets to bones and liver. The Taxotere did well for me and now I am stable on Herceptin (and Tamoxifen). I haven't added Perjeta, as my current treatment is working well for me. However, as a fellow Australian, you should know that continuing Herceptin and Perjeta has become usual here and is completely covered by the PBS.
This time on the heavy chemo won't be easy, but things will get better!
Best wishes to you and your wife..... Pam
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Diagnosed 2004: Lumpectomy - 2 tumours, both grade 1 infiltrating duct carcinoma, about 12mm. ER+,
C-erbB-2 status 3+.
Clear margins, no nodal involvement.
Radiotherapy, i year Tamoxifen, 4 years Arimidex.
Rediagnosed 2012: Multiple bone metastases.
3/12: began on Marianne trial - T-DM1 + Pertuzamab/Placebo.
5/12:Unexpected development of numerous bilateral liver mets. Came off trial.
Started Docetaxol/ Herceptin + Zometa.
8/12:Bones stable +major regression in liver (!)
9/12:Can't take any more Docetaxol! Start on Herceptin and Tamoxifen. Cross fingers!
Changed to Denosumab.
11/12: Scan shows stable - yay!
11/13: Still stable :-) !!!
1/16: All stable, but lowered calcium, so switched to Zometa 3 monthly.
2/19: Happily still stable on Herceptin, Letrozole and 3 monthly Zometa.
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