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5 years out - Chronic Pain
Hi All - It's been awhile since I posted but I do lurk to see how everyone is doing. I am coming up on my 5 year anniversary from diagnosis which is awesome but suffer from chronic nerve pain. Has anyone experienced this? It was very mild after I finished all treatments but in December of 2014 it started intensely and lasted almost a month. It's excruciating pain in my fingers, toes, hips, back, etc. - it doesn't happen all the time, I have weeks where I am good, but when it does happen, it's been debilitating.
Been to so many doctors, done so many tests, but no one seems to find anything. I have read posts from other cancer survivors on the Cancer Society website and there are many survivors that have this and it may be chemo induced fibromyalgia.
I feel like I am going insane since all the doctors I see feel I am lying or a hypochondriac! Just wanted to see if anyone has had this type of chronic pain after chemo.
Jessica
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11/17/10 - Diagnosed with 4.5cm tumor in right breast, IDC, Stage 2, Nuclear grade 2, ER+ PR+ HER2+
12/13/10 - Lymph node biopsy - negative
12/28/10 - Started neo-adjuvant treatment along with clinical trial with 4 rounds of AC chemo every 3 weeks
3/15/11 - Began weekly Taxol/Herceptin infusions along with 750mg of Tykerb taken by mouth daily
6/28/11 - Finished last cycle of Taxol
7/27/11 - Breast MRI shows tumor has dissolved, remarkable reaction to chemo
8/31/11 - Lumpectomy, Sentinel Node biopsy. Node negative, clear margins, 7mm of cancer left over from chemo.
10/05/11 - Started radiation, 5 days a week for 7 weeks.
11/8/11 - Finished radiation
3/21/12 - Last Herceptin!
3/26/12 - Port removed!
Tamoxifen for 5 years
8/4/15 - Hysterectomy & bilateral salpingo-oophorectomy. Due to large fibroids. No cancer!
8/8/15 - Started Arimidex
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