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Hi Jakki,
I do get mouth sores but mainly my tongue gets very patchy and sore. I use something we call Magic Mouthwash - it is a prescription and I have no idea what is in it!! But it really works. Maybe someone else can let you know the formula for magic mouthwash so you can ask your doctor about it.
I started Tykerb by itself in April and have had pretty severe diarrhea. I'm currently giving myself a break until I see my doctor on Tuesday. But like the other gals have said, everyone is different. After nearly 11 years of treatment, I have tolerated all the chemos amazingly well. I think that in my case, I may have had so much chemo that the Tykerb is affecting me more than most.
Hang in there... this drug combo is so promising!
__________________
Debbie
8/96 - Diagnosed Stage I - 1.8 cm tumor in left breast
0+ lymph nodes, ER+/PR-
Lumpectomy, radiation, CMF x 9, Tamoxifen
6/99 - Stage IV - 1.2 cm tumor in left lung, HER2 NEU +
VATS thoracotomy, Herceptin and Arimidex
2000 - Bone mets to left scapula and right ribs
Herceptin; Taxol x 9, Zometa
2/2001- Rt. lung - 6 mm tumor
Mini-thoracotomy
2/2001 - 12/2006
Xeloda-10 months, Navelbine-10 months,
Gemzar, Abraxane, Taxol/Carboplatin x 10, Aromasin, Faslodex,
Zoladex, Tamoxifen
2001 - Radiation to left scapula for pain managenent
9/2004 CyberKnife to right rib
7/2006 - Pleural effusion - thoracentesis performed twice
1/2007 - Pleuradesis and Taxotere x 5
4/2007 - Stopped Herceptin after 8 years (weekly).
Started Tykerb with Taxotere but stopped after 10 days
5/2007 - Stopped Taxotere, restarted Tykerb and Herceptin
Currently on Tykerb, Herceptin, Zometa
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