HER2 Support Group Forums - View Single Post - New Oncologoist needed

Jackie07 · 01-20-2014, 04:53 PM

I hear you.

I was so demanding that I could see my oncologist was trying to hold his temper ... When I griped to the oncology nurse - both of them I'd known for over five years by then because I was being treated for a recurrence - she said it casually that I could switch to a different doctor.

I did not want to change doctor! I wanted to hold him responsible for everything!

I asked for the BRCA test after learning the history of the Jews in Kaifeng, China - he did not think I fit the profile, but reluctantly ordered it.

...

Guess what I was trying to say is: Use the tension to your advantage. He might be correct because currently you could be in 'chemopause' and AIs will deplete the hormone from everywhere in our body which could lead to more side effects and speed up the aging process. So there are other things to consider. New study is recommending extending the use of Tamoxifen to 10 years for premenonpausal women. Even after I'd had a prophylactic hysterectomy/oo (due to family cancer history - a new cancer incident), I was still on Tamoxifen - for more than a year before switching to an AI (prescribed by a new oncologist when my oncologist moved his practice to his hometown an hour's drive away.) The new oncologist's decision was probably based on the numbers on my blood work, new research result/recommendation, ... etc.

Sending you good vibes.

01-20-2014, 04:53 PM	#3
Jackie07 Senior Member Join Date: Jan 2008 Location: "Love never fails." Posts: 5,808	Re: New Oncologoist needed - Final Straw I hear you. I was so demanding that I could see my oncologist was trying to hold his temper ... When I griped to the oncology nurse - both of them I'd known for over five years by then because I was being treated for a recurrence - she said it casually that I could switch to a different doctor. I did not want to change doctor! I wanted to hold him responsible for everything! I asked for the BRCA test after learning the history of the Jews in Kaifeng, China - he did not think I fit the profile, but reluctantly ordered it. ... Guess what I was trying to say is: Use the tension to your advantage. He might be correct because currently you could be in 'chemopause' and AIs will deplete the hormone from everywhere in our body which could lead to more side effects and speed up the aging process. So there are other things to consider. New study is recommending extending the use of Tamoxifen to 10 years for premenonpausal women. Even after I'd had a prophylactic hysterectomy/oo (due to family cancer history - a new cancer incident), I was still on Tamoxifen - for more than a year before switching to an AI (prescribed by a new oncologist when my oncologist moved his practice to his hometown an hour's drive away.) The new oncologist's decision was probably based on the numbers on my blood work, new research result/recommendation, ... etc. Sending you good vibes. __________________ Jackie07 http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2 NICU 4.4 LB Erythema Nodosum 85 Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d 3 Infertility tmts 99 > 3 u. fibroids > Pills CN 3 GKRS 52301 IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET 6 TCH Cellulitis - Lymphedema - compression sleeve & glove H w x 4 MUGA 51 D, J 49 M Diastasis recti Tamoxifen B. scan Irrtbl bowel 1'09 Colonoscopy 313 BRCA1 V1247I hptc hemangioma Vertigo GI - > yogurt hysterectomy/oophorectomy 011410 Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk DEXA 1/13 1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer. 3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer. Start Vitamin D3 and Calcium supplement （600mg x2) 10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016 7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence. 7-10-2019 CT to check lung nodule. 1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule. "I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa Advocacy is a passion .. not a pastime - Joe Last edited by Jackie07; 01-20-2014 at 05:17 PM..